Point of blog:
Is to try to make this world a more wheelchair friendly place.
Who am I?
I’m a young adult, a dwarf and a wheelchair user.
Can you help?
Yes please send me any photos or interesting info on accessibility around the world.
Today is Morquio syndrome and related diseases awareness day.
Here are a few websites you can check out to learn more about my disability, morquio.
Carol Ann Foundation~ Im on the board of trustees and this where the medical research gets funded among many other organizations. you can also read stories about different people with Morquio syndrome.
Understanding Dwarfism ~ About understanding many disabilities. I wrote a small piece about Morquio syndrome.
Morquio Conference~ About gather Morquio families, and medical research. You can read some science papers, researches on this site.
MPS society~ this society set up this awareness day.
I am back on a more regular schedule since I finish a semester of school. I am looking forward to writing more post on this tumblr.
A few articles and sites to check out:
Why I No Longer Apologize for My Crutches. by Natalie E. Illum. She wrote a strong article explaining how she come to accept her disability spastic cerebral palsy.
At New Mobility the magazine for active wheelchair users, published an article, Taming Our Fear of Flying, on the same page they have six articles all related to the world of flying and being disable. As someone who has flown a number of times i wished i had read these articles prior to flying. There are some awesome tips!
How Misunderstanding Disability Leads to Police Violence by David M. Perry and Lawrence Carter-Long. This article just makes my blood boil! I thought the police’s job was to protect us, lately i have been reading more and more articles how the cops aren’t keeping us safe.
A little tip. My local library is loud and annoying so I just got a pin for my library card to go online and put the books on reserve. It just blows me away that I can pick out all the books I want and it will me waiting for me near the front door. Do yourself a favor go to nypl.org and sign up. that way you never have to worry about a book being too high or too low or something being in your way. Kudos to New York Public Library for making things more accessible.
fyi- you don’t have to be a wheelchair user to take advantage of the NYPL online.
It’s been a long time since I’ve posted. Life just has away of stealing me. Stay tune
Great question! If you ever happen to be at those restaurants again try taking a photo of the sign and the steps. That I could post on this blog. Sadly I haven’t heard of a 1-800 police for ADA to call about this. Ada does have a website you can file a complaint at. www.ada.gov
I’ll ask some of my friends what they do. I personally just blog about it and complain to the manager of the restaurant/ store. Thanks for being on the look out!
I have been super busy lately and hope to find more time for this blog. Wish we could an hour to my day just for blogging. I love blogging! In the mean time please enjoy this summer weather and eat ice creams!
Sorry I have not been posting a lot in the last few months, I didn’t forget about it! I recently became the Executive Director of the First Annual Morquio Syndrome Conference and I’ve been very busy organizing the two day event. If you have Morquio Syndrome, please send me your email. So I can send you an official invitation!
In the meantime, if you come across any interesting articles, blog posts or photos related to the issues of accessibility or disability awareness, send them my way and I will do my best to blog about it.
First I want to start out by thanking my followers and everyone who has offered their support in my desire to begin blogging. I hope you will continue to read and spread the word by telling your friends, family and co-workers about it!
Here is a little recap of 2011:
When I started this blog about six months ago, the idea was to write about all the missing curb cuts in New York City. Overtime, I wanted to discuss other issues of accessibility by adding interesting articles and other blog posts.
For those of you who are following my blog and are in wheelchairs or can’t step up on to a sidewalk without ramp, here is the “master list” of the New York City blocks that I’ve discovered lack curb cuts. I suggest you copy this list and put it into your mobile phone or mark this on a map so you don’t have the same frustrations I have! Keep in mind, this isn’t all of the non-ramped blocks in the city so stay tuned!
Does anyone know where I might buy a good street map of Manhattan? I would love to make an “Accessibility Map” that has all the missing curb cuts listed. Let me know!
Most importantly, happy new year! I hope 2012 brings great things to you & yours!